PAME: Key learnings and next steps from the NIH funded Center for SUDEP Research

updated at 2021-11-16 12:12:08 -0500

The webinar was held on October 25, 2021 10:00 AM Central Time (US and Canada), moderated by Daniel Lowenstein, MD, University of California, San Francisco and presented by Vicky Whittemore, PhD, NIH/NINDS, Jeffrey L. Noebels, MD, PhD, Baylor College of Medicine, Houston and Samden D. Lhatoo, MD, UT Health, McGovern Medical School, Houston.

The webinar was attended by 123 live participants, 19 advocates from non-profit organizations, 30 people with epilepsy or family/partner/caregiver, and 19 international participants from Canada, Germany, Portugal, Sweden, Russia and United Kingdom.

Feedback from participants:

  • “Tremendous advances in the understanding of SUDEP”
  • “Need for cardiac and respiratory monitoring in EMU”
  • “Hope and optimism for identifying new biomarkers, diagnostics and treatment options, and interventions”
  • “Research is ongoing to study the overlap of epilepsy, sleep apnea, and SUDEP”
Screen shot 2021 11 16 at 10.57.19